Dear Newly Diagnosed Me

Dear Newly Diagnosed Me

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At the recent international MS patient summit I heard of an idea that I really liked.  It’s one of those things that can not only help the person completing the exercise, but also for those who are just now hearing that they have multiple sclerosis.

The idea is writing a letter to the newly diagnosedyou.

We’ve asked before, what you would have wanted to know when you were diagnosed.  Today, I’m going to expand on that thought because you can be a resource to so many who have come (and, unfortunately continue to come) after us.  Today, I’d like you to jot a quick paragraph to the newly diagnosed .

I’ve seen a few television adverts to this effect.  I’ve even (and I’m sorry, I can’t remember where… cog fog day) seen a version of it on one of the MS sites out there (I will put a link in if/when I can find it).  And I love the idea because it’s what this blog is all about; LIVING with MS.

The sheer mass of knowledge that our cohort on the blog community possesses would be crushing.  I’d like to crush difficulties of our newly diagnosed friends.  You now know what you would have wished to hear, what you now know that would have beensohelpful… you can now be that help to someone new to our “club”.

Maybe you quit your job too soon, maybe you stayed working longer than you should have.  Perhaps something about parenting with MS would have been nice to know or when you told your boss, boyfriend, family?  Did you handle something particularly well… or rather poorly and you’d like to proffer that knowledge to someone who might just now (or, as this is the web, in the future) hear the words “You have multiple sclerosis” ?

Well, here is your chance.

One paragraph.  What have you learned that you wish you would have?  What would someone newly diagnose like to know that you now know?

Dear newly diagnosed me;

It's going to suck today… and it’s going to suck tomorrow.  For the few next weeks and months it’s going to suck.  But one day, not that far down the road, you’re going to wake up and realize that living with MS sucks just a little bit less than it did the day before.  You have the power to bring that day on much quicker if you simply realize that things are no longer the same.  Don’t try to do things the same, don’t try to think of things the same and accept that some of the things you did are just not worth the effort any longer.  There are so many things that you can do, can still do well and had never though you might do.  Focus there and you’ll be surprised at what a difference it will make in your life and in others.

Oh, and the stuff you thought was so damned important… 9 times out of 10 wasn’t anywhere as important as you believed them to be.

Your turn…

Dear newly diagnosed me…

Wishing you and your family the best of health.



Don’t forget to follow me on the Life With MS Facebook page and on Twitter, and subscribe to Life With Multiple Sclerosis

Last Updated:6/14/2013
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Date: 03.12.2018, 19:25 / Views: 91131